Help Advance Hodgkin Lymphoma Research
Are you a patient with Hodgkin lymphoma, either now or in the past?
​
If so, join me in testing the MyHodgkin MyHealth app to improve understanding of the long-term consequences of Hodgkin lymphoma treatments!
​
Long term survival rates for people diagnosed with Hodgkin Lymphoma are better than ever, but with significant changes to treatment over the last decade, more information is needed to further understand the longer-term consequences of these treatments.
MyHodgkin MyHealth (MHMH) is an Australian lead research project designed to collect vital data on lymphoma treatment, remission status and medical issues including fertility for patients living with Hodgkin lymphoma. The MHMH research project has been designed as a mobile App to allow Hodgkin survivors to participate whether at the hospital or clinic or at home. You will be asked to complete a baseline health survey which will ask details about your disease, its treatment and any complications that may have arisen. The researchers are particularly keen to capture fertility issues and children conceived after treatment. Thereafter you will be asked to update your data every 6 months to confirm your ongoing health, or any changes to your health or parenting status.
Why use MHMH?
Contribute to a growing database that helps to improve the understanding of Hodgkin lymphoma and its long-term effects. Be part of research that aims to improve the care of patients with Hodgkin Lymphoma.
​
Step 1:
In the first step, we aim to recruit Australian Hodgkin Lymphoma patients to the MHMH project, to demonstrate the feasibility of this research. Some key metrics include the number of people who download the App, and the number who stay engaged over a 6-month period.
​
Step 2:
If Step 1 is successful, the study will start international recruitment to MHMH, co-led by Hodgkin Lymphoma doctors and patients. International recruitment is essential to build a large enough database to provide meaningful real-world information.
​
Future steps:
If Steps 1 & 2 are successful, the researchers plan to enquire about other important issues such as quality of life.
About The Resarch Team:
​
Principal Investigators: Dr Nicole Wong Doo, Prof Judith Trotman
​
We are haematologists at Concord Hospital, Sydney, Australia, who are passionate about improving the quality of life for lymphoma patients. Through MHMH, we aim to understand the health of Hodgkin patients from their own perspective and use this data to shape and improve Hodgkin therapy.
​
MHMH is an investigator-initiated research project, with funding provided by the community-driven not-for-profit organisation ‘Foundation for a Bloody Great Cause’.
Download the MyHodgkin MyHealth app and create an account today - simply open the App Store or Google Play Store and search: ‘MyHodgkin MyHealth’.
​​
Together, we can make a difference!
​
Find more information about MyHodgkin MyHealth here.
​
This study has been approved by the Ethics Review Committee CRGH of the Sydney Local Health District. Any person with concerns or complaints about the conduct of this study should contact the Executive Officer on 02 9767 5622 Concord and quote protocol number 2022/ETH02150.
